Tuesday, December 29, 2015

Just to debunk a couple myths

First things first - people with a mental illness are rarely dangerous to others- most tend to harm themselves.
  There are spectrums to each illness and some illnesses compound onto other illnesses. And the longer the mental illness goes undetected, undiagnosed, not supported the more complex the illness gets as do the symptoms are harder to fight. 
I battle first and foremost post traumatic stress disorder, it was left undiagnosed for years- I would dissociate in the mall and lose track of my mother when I was about 4, very scary for both parties, I was also a bad sleeper. This also evolved into other issues, that were thought to be based on my thyroid (-I was born without a thyroid function)   
Later I was probably showing signs of being Borderline Personality.  And we realise I had a predisposition to Bipolar disorder due to my fathers diagnosis.  But the Borderline Personality Traits started rearing their ugly head after the birth of my son.  I knew something was wrong; but I knew instinctively how to nurse a baby, how to react if he cried. But his crying got to me, and everyone as his crying lasted a year, and other things started propping up in his health, and mine with the burnout, The abuse from my spouse became more prevalent.  I was used to abuse as a child so I somehow accepted that I deserved it but I also Knew I didn't, but lived with that shame. Those of us with mental illness are that much more vulnerable to abuse and violence from others.  
We are vulnerable to disability funding, lack of care by professionals, we don't change because we fear starting all over again and opening new wounds.   Our reality can change on us in a split second, and we lose custody of our children. We are at the mercy of churches, and the social system to be a voice for us as people don't take us seriously when we fight for certain important issue ( and many a times we are verbally harassed in public for having had to make difficult decisions in regards to the care of our children and ourselves). Sometimes even the professionals that were supposed to help us don't and leave us hanging when we try to reintegrate into society. So we are back into clinics and need to stay for months at a time while our bodies and brains need to reintegrate, and we need to develop emotionally - for the years we lost as a child.  And then sometimes we are blessed with a support network of people who will listen, who will understand, who can come when your windows start looking like they are wobbling ( no I did not drop acid), and then there are Drs who get it when your cognitive thought process goes out the window because you are over stressed. ( and she will help you pack, and she will help get you to the clinic herself, and sit with you at the intake interview)  and there are community nurses who will come when you have horrible dissociative states and sit with you to help you come back to the here and now. Or nurses that will just be a good ear, or backup when you need to apply for a legal representative for your children.   And there are churches that understand how you relate to religion and your healing process, and offer support that you can feasibly visit with your children.  
People with mental illness can be vulnerable in the eyes of some organised religion- we just have to believe more and we'll be healed and won't need to be on disability- please don't debate with a friend over this this in a public place- it just insinuates the stigma that much further.  And leaves us feeling that much more raw, vulnerable. And a negative focal point. 
If I am participating in a program to give my day some structure and social connection- I don't need that to be insulted- I am trying to participate in life the best I can. This has obviously given me a safety net of people who understand my challenges.  But we are no less an artist( or person) than those in the normal world.  ( yes I get this often when people realise some of my challenges) don't worry, I am stronger than you think, even if I need more breaks or react sensory to triggers. 
It would be greatly appreciated around the times we will have fireworks also to have safe havens and not be told we are babies- to just put a pillow over my head and suck it up. - um mister you have no clue how the nervous system can react to a trauma trigger.   For all the soldiers home for the holidays, for police and security people whom have had to live with witnessing death due to gunfire and bombs, we are that much more sensitive to such triggers. That can set us curling in corners terrified, our blood pressure can drop drastically, our body temperatures change and we can lose orientation to where we really are. So think again about telling me or any other person with PTSD to suck it up over the holidays, or tell us just to keep it in the past.- we would love our past to stay in the past, but it isn't always the case. We may learn skills to cope with the situation better, but it never goes away. 
So to remind you the person with a mental illness is less dangerous to the outside world, we are more often than not terrified, and vulnerable.  The misuse of the language, instigates stigma that is attached to our illness, makes our fight that much harder. There are illnesses within that have negative connentations, and it is difficult to get help once diagnosed, but also treatment from other patients can be difficult. 
And lastly language issues can make getting the necessary help that much more difficult. - I had to learn a whole new aspect of a language- it wasn't enough that I had to learn to develop my emotional language but I needed to do this in a language that was not my mother tongue. And not what they teach you in language school.  So if you can have empathy for families of refugees, who arrive needing to seek help, and not knowing the language, and needing it to participate in life in a new country. And cope with nightmares, dissociation, and giving back to the society that took them in. Respect that they have been exposed to trauma beyond your wildest imagination, go easy on the fireworks this New Years and national holidays. It is most appreciated. Your neighbour with the mental illness. That combination that is debilitating. But I am a fighter, a mom, an artist and of course a person.

Friday, December 25, 2015

Forget the past, and move on with the future, live in the here and now. Oh and by the way you shouldn't be hurting yourself like that.

Well, easier said than done. 
Fireworks go off at New Years and 1st of August here so I have to mentally prepare myself.   And my village does the mandatory shooting practice. And those drums in the pageant made me look sleepy by the the time I got to my friends for xmas eve supper.  All these triggers make that event play like it was a couple minutes ago, absorbing my dreams, and absorbing what limited energy I have. And then to hear "forget the past" makes me want to set a violent film in your ear and before your eyes. And remind you that is where my past lies- when I hear all the bangs my past is here and now. And I need to fathom all my energy to realize what date we are on our calendar. 
In addition I discovered that I was going to have to fight to prove that someone with borderline personality is rarely abusive- most likely a victim of abuse ( due to our black and white perception of our world) and that we are not the blanket diagnosis that was thought to be before 20 years. Oh and Mothers with Borderline Personality are not raging emotional, cold beasts that many books and websites state.  
Yes we deal with rollercoasters that run faster than you can say blink, some of us self harm, and some of us drink. We don't inflict pain upon others- we inflict further pain upon ourselves in order for others to understand the depths of our pain. 
And to state how bad medication is, or how we need to believe more in a higher power, or that we are less quality people because we live with a mental illness in itself is absurd.  
I have had Drs tell me they can't help me. That all my pain was psychosomatic, to turn around and have the chief of psychiatry tell me she couldn't help me. Only lit a fire in me. I knew I had to persist with whatever draining energy I had, to get the help I needed. And then to have to be publicly shamed for having such an illness and have to make a near impossible decision regarding my family is ludicrist. I did not stand for it 5 years ago, I did not stand for it 20 years ago, and I will not stand for it now. 

Tuesday, September 22, 2015

Pouring rain

And not sleeping  again. Trying to get my new website up and rolling- seems to take forever tonight just to get a picture uploaded as a thumbnail.how n gods name is a gallery going to work?

Saturday, August 29, 2015

Ideas and shows

Everyone has been telling me i need to go bigger in my pictures. And i need to consider an entry for the art show in the kantonal gallery- i have been trying for the last couple years - i will try two abstract pieces that i had done in malcafe- they were stunning as is in gouache but my friends remind me that i could do these abstract sky, and redo my piece across the blue horizon. I might do these in oil instead of acrylic. But i have a better choice of colours in acrylic and can play a lot more with oil or acrylic 
I now have learned a system to price my pieces when i am doing a commision- i have a few commisions to do so they are keeping me hopping-but i need to get through my daughters birthday first. 
The piƱata is causing me a bit of grief falling apart in a corner!  I have such plans with this little piece. Oh well will try to see ohow it dries and maybe i could save it.
Working on a rose commision and i realised i was getting restless with the piece-?weekend  take a break and start what i want to present to the art gallery.  Then go back. Maybe i'll get more inspired- i would really like to finish the piece, but my issues with following through with goals is scraming at me. 
In the background i want to create a calendar to sell this year and to give to family as a present.
Too much work and no direction feeling just overwhelmed in my work.
But i will try to see through- hell we have a show in october, a possible show for november through to january and trying to get in with the gallery. To get my art known.
My mother told me that i really do speak through my art, i am so grateful i have the studio, to bounce ideas, be inspired, understand each other.  So i don't shut down when i need to do the work.

Monday, June 22, 2015

Shell shocked

So since I had my daughter I couldn't take extra medication, but my system went on red alert when I heard the gunshots at 9 at night after getting back from the party at the studio.  And this evening was the storm ( that thunder even though only a few brief minutes rattled my fear again) this evening I had the permission to take something - I didn't have to be up by a certain hour. )  but as I write this it is 2:43 in the morning.  And I am only starting to yawn.  I tried to concentrate today. But I couldn't do the task at hand like I did last week. The horse painting is done as it the island in water landscape' the rooster and the sunflowers.  It was a very prolific week last week and this week my brain feels like it's on jello. The piece I did for mal Cafe was a quick piece. And the second piece my head was playing a piece of music.  The question from mal Cafe was the horizont between heaven and earth and all I could think of was fire, sunsets dragons fire.
My heart seems lost in a space of uncertainty. It beats for a friend, but I don't think his beats for me.  Or maybe he was wise and saw the uncertainty of Sophia.   I explained to Sophia that my friendship is more like that of the guys in her class and social group. You have fun together, you trust they will be there in class, you trust they are part of your day   And there is a friendship there and nothing more.  And you don't want to wreck that friendship.  We have things in common and we understand when we are having a difficult time. We know each other's weakness and help each other out.  We don't think any less of each other because of our challenges.  And I wish for her to understand these friends are equally as important. 

Saturday, June 6, 2015

Preventative measures

Well i reacted to a thunder lightening storm last night leaving me feeling crippled on my left side! So since i learned there was going to be a storm again tonight ( which turned out to be on  the other valley) i had to say no to having my little girl stay over this weekend. It may be hard to say no to her visiting but she needs her mom to look after her not the reverse!  So i will take her the next weekend there is no sunday school. 
But i also needed to take some medication so my body wouldn't be so sensitive to the abruptness of a thunder/lightning storm. If anyone tells me to suck it up and just weather it out has never had their bodies react to sound and obviously had little no trauma with guns and violence. Theres a reason i need to steer clear of switzerland and fireworks around the 1. August. But youknow its not just the 1. It's also the week building up and the few days after.  This means that i become less independant as imcan move less, sleep less, speech impairment  and of course More nightmares.  So i will try to " run away over that week if i can. 
But i need to figure out this next week- how to get oun schedule and get this horse painting done. So it is seen exactly phow much talent I have. I am proud to be asked to do portraits of animals - i love doing animals really and landscapes- i was asked to do two pieces of venice! Now thats a tall order.. But i love the challenge.

Sunday, May 31, 2015

Is it fear of abandonment or fear of someone new

I feel like I live in the fear of abandonment like i need to say goodbye first and the idea of getting to know new people that I will need to trust. 
In the last 7 months I have been having a change of support staff. Not sure I was so happy about all these goodbyes- since beginning of december i had to say goodbye to the stable person I had hile everything else was chaotic. This support person was my calm in the storm. For pretty much two years.  She came with me venturing on my own after the ten long months in the clinic. She was there when my son got his formal diagnosis. And she was there when my dissociations would get the better of me. And she was there to discuss my health with my team- when was it too much and how much could i handle on my own. She was there when I was barely making it to being strong enough to travel on the plane alone to the other side of the world. She reminded me how strong I really was. Then as I returned back I learned one of the support staff at the studio and someone i really got to trust was leaving to live a dream. While it was hard to let her go I understood the need to go live in a developing country- i lived it already. And I could offer her some advice of what was important to learn in learning a new language. But it still meant saying goodbye again.  And shortly after i was closing a part of my life in that I no longer needed supervision when looking for my kids. Yet again another good bye. ( though the goodbye is not fully finished yet.- we need to do something for the kids to offer them some closure to- it was rather abrupt  in that she was there when i returned from canada and then suddenly i was able to have my son weekday afternoons without supervision. A good thing but as I said it lacked closure. 
But issues run further back and in my time that i was stationed in a clinic I bounced around alot( until the long clinic stay of nine months on one station)  and any short stay I required I would be offered a bed where there was one.  Not with people who really knew my symptoms or why or how I was in trouble and always in the beginning I was shy or just plain terrified of the staff. Though recently it didn't matter about the station staff anymore I know which therapy/therapists to ask for. Because i am comfortable enough with the clinic, rhtyhms, and the church that is connected.  It is a home that i know is there if i should fall back down. 
The last station I stayed the longest on I could learn to trust people would help me understand how my brain was working and that I was working towards a new space of personal progression, to understand that I was more ill than anyone truly credited. That my wings had been injured and need time to heal. But with this team I gained more strength and insight than i hadin my almost 40 years.  And iI learned that i was not alone. I had to make a tough decision to leave an emotionally toxic marriage- emotionally abusive marriage, but I had a team to support me and catch me when I fell. 
I met a friend again in this time that has become like a sister.  Who is still here through it all. 
So my fears of abandonement have been lessened due to this continuum.  But they are still there. My fear of abandonment stems from my infantile months of being ill in a hospital because my mother couldn't be there, my infantile moths of my fathers death. The changeover in babysitters while my mom was trying to go to nursing school. I was not a difficult child but either their lives changed or the babysitter practically ignored me the whole day I was there. 
My fear of abandonment stems from constantly being bullied in school- because i was new, physically challenged with a speech impairment and awaiting hearing aids.  The kids bullying me and the teacher asking why i wasn't playing with the other kids- they don't want me to play  or I was always the last one.  Or teachers turning their back while a whole class sexually harassed me and then act dumbfounded when I leave the room. ( the next teacher knew what i was up against and called the students on their behaviour- i stayed in cooking for another two years because of her) but grade 8 I slipped badly. The bullying was affecting me and my homelife was affecting me, nightmares, and horrible rides to school- I went from aceing math to struggling, and a teacher who didn't get how the class treated me.  I also felt ignored by most of the teacher staff that year. I felt abandoned by most of my classmates,  so I had tried to take my life. - I wasn't exactly feeling worthy to anyone at that time and in my attempt i even lost my doctor. I was going to have to start new with everything. But i had to go back to my old school again and try to hold my head again, bring my grades up again. I did have some teachers who knew what I was capable of. And they gave me some moments to shine again. But i still had people who underestimated me.  Abandonment as usual. Nothing I did could help me prove what I was capable of.   I wanted out of that school and that life. That prempted idea that because i had a physical disability I was also intellectually challenged- my mom didn't have the money to get me into a private-school. 
Now I fear abandonment for my son. As he faces challenges with his physical disability.  Now I fear my children see that I abandoned them because I left the family unit.  And I see my daughter being shy and unsure of pursuing what lies in her heart- her love of singing- and she doesn't trust that she has a lovely voice.